HELPING CHILDREN WITH AUTISM

Adapted from HELPGUIDE.org

A parent’s guide to autism treatment and support

If you've recently learned that your child has or might have an autism spectrum disorder, you're probably wondering and worrying about what comes next. No parent is ever prepared to hear that a child is anything other than happy and healthy, and a diagnosis of autism can be particularly frightening. You may be unsure about how to best help your child or confused by conflicting treatment advice. Or you may have been told that autism is an incurable, lifelong condition, leaving you concerned that nothing you do will make a difference.

While it is true that autism is not something a person simply "grows out of," there are many treatments that can help children learn new skills and overcome a wide variety of developmental challenges. From free government services to in-home behavioral therapy and school-based programs, assistance is available to meet your child's special needs. With the right treatment plan, and a lot of love and support, your child can learn, grow, and thrive.

Don’t wait for a diagnosis

As the parent of a child with autism or related developmental delays, the best thing you can do is to start treatment right away. Seek help as soon as you suspect something’s wrong. Don't wait to see if your child will catch up later or outgrow the problem. Don't even wait for an official diagnosis. The earlier children with autism spectrum disorders get help, the greater their chance of treatment success. Early intervention is the most effective way to speed up your child's development and reduce the symptoms of autism.

When your child has autism: Tips for parents

• Learn about autism. The more you know about autism spectrum disorders, the better equipped you’ll be to make informed decisions for your child. Educate yourself about the treatment options, ask questions, and participate in all treatment decisions.
• Become an expert on your child. Figure out what triggers your kid’s “bad” or disruptive behaviors and what elicits a positive response. What does your autistic child find stressful? Calming? Uncomfortable? Enjoyable? If you understand what affects your child, you’ll be better at troubleshooting problems and preventing situations that cause difficulties.
• Accept your child, quirks and all. Rather than focusing on how your autistic child is different from other children and what he or she is “missing,” practice acceptance. Enjoy your kid’s special quirks, celebrate small successes, and stop comparing your child to others. Feeling unconditionally loved and accepted will help your child more than anything else.
• Don’t give up. It’s impossible to predict the course of an autism spectrum disorder. Don’t jump to conclusions about what life is going to be like for your child. Like everyone else, people with autism have an entire lifetime to grow and develop their abilities.

Helping children with autism tip 1: Provide structure and safety

Learning all you can about autism and getting involved in treatment will go a long way toward helping your child. Additionally, the following tips will make daily home life easier for both you and your autistic child:

• Be consistent. Children with autism have a hard time adapting what they’ve learned in one setting (such as the therapist’s office or school) to others, including the home. For example, your child may use sign language at school to communicate, but never think to do so at home. Creating consistency in your child’s environment is the best way to reinforce learning. Find out what your child’s therapists are doing and continue their techniques at home. Explore the possibility of having therapy take place in more than one place in order to encourage your child to transfer what he or she has learned from one environment to another. It’s also important to be consistent in the way you interact with your child and deal with challenging behaviors.
• Stick to a schedule. Children with autism tend to do best when they have a highly-structured schedule or routine. Again, this goes back to the consistency they both need and crave. Set up a schedule for your child, with regular times for meals, therapy, school, and bedtime. Try to keep disruptions to this routine to a minimum. If there is an unavoidable schedule change, prepare your child for it in advance.
• Reward good behavior. Positive reinforcement can go a long way with children with autism, so make an effort to “catch them doing something good.” Praise them when they act appropriately or learn a new skill, being very specific about what behavior they’re being praised for. Also look for other ways to reward them for good behavior, such as giving them a sticker or letting them play with a favorite toy.
• Create a home safety zone. Carve out a private space in your home where your child can relax, feel secure, and be safe. This will involve organizing and setting boundaries in ways your child can understand. Visual cues can be helpful (colored tape marking areas that are off limits, labeling items in the house with pictures). You may also need to safety proof the house, particularly if your child is prone to tantrums or other self-injurious behaviors.

Helping children with autism tip 2: Find nonverbal ways to connect

Connecting with a child with autism can be challenging, but you don’t need to talk in order to communicate and bond. You communicate by the way you look at your child, the way you touch him or her, and by the tone of your voice and your body language. Your child is also communicating with you, even if he or she never speaks. You just need to learn the language.

• Look for nonverbal cues. If you are observant and aware, you can learn to pick up on the nonverbal cues that children with autism use to communicate. Pay attention to the kinds of sounds they make, their facial expressions, and the gestures they use when they’re tired, hungry, or want something.

• Figure out the need behind the tantrum. It’s only natural to feel upset when you are misunderstood or ignored, and it’s no different for children with autism. When children with autism act out, it’s often because you’re not picking up on their nonverbal cues. Throwing a tantrum is their way communicating their frustration and getting your attention.
• Make time for fun. A child coping with autism is still a kid. For both children with autism and their parents, there needs to be more to life than therapy. Schedule playtime when your child is most alert and awake. Figure out ways to have fun together by thinking about the things that make your child smile, laugh, and come out of their shell. Your child is likely to enjoy these activities most if they don’t seem therapeutic or educational. There are tremendous benefits that result from your enjoyment of your child’s company and from your child’s enjoyment of spending unpressured time with you.  Play is an essential part of learning and shouldn’t feel like work.
• Pay attention to your child’s sensory sensitivities. Many children with autism are hypersensitive to light, sound, touch, taste, and smell. Other children with autism are “under-sensitive” to sensory stimuli. Figure out what sights, sounds, smells, movements, and tactile sensations trigger your kid’s “bad” or disruptive behaviors and what elicits a positive response. What does your autistic child find stressful? Calming? Uncomfortable? Enjoyable? If you understand what affects your child, you’ll be better at troubleshooting problems, preventing situations that cause difficulties, and creating successful experiences.

Helping children with autism tip 3: Create a personalized autism treatment plan

With so many different autism treatments available, and it can be tough to figure out which approach is right for your child. Making things more complicated, you may hear different or even conflicting recommendations from parents and doctors. When putting together an autism treatment plan for your child, keep in mind that there is no single treatment that will work for everyone. Each person on the autism spectrum is unique, with different strengths and weaknesses.

Your child’s treatment should be tailored according to his or her individual needs. You know your child best, so it’s up to you to make sure those needs are being met. You can do that by asking yourself the following questions:

A good autism treatment plan will:

• Build on your child's interests.
• Offer a predictable schedule.
• Teach tasks as a series of simple steps.
• Actively engage your child's attention in highly structured activities.
• Provide regular reinforcement of behavior.
  Involve the parents.

Source: National Institute of Mental Health

• What are my child’s strengths?
• What are my child’s weaknesses?
• What behaviors are causing the most problems?
• What important skills is my child lacking?
• How does my child learn best (through seeing, listening, or doing)?
• What does my child enjoy and how can those activities be used in treatment?

Finally, keep in mind that no matter what autism treatment plan is chosen, your involvement is vital to success. You can help your child get the most out of treatment by working hand-in-hand with the autism treatment team and following through with the therapy at home.

Choosing autism treatments

When it comes to autism treatment, there are a dizzying variety of therapies and approaches. Some autism therapies focus on reducing problematic behaviors and building communication and social skills, while others deal with sensory integration problems, motor skills, emotional issues, and food sensitivities.

With so many choices, it is extremely important to do your research, talk to autism treatment experts, and ask questions. But keep in mind that you don't have to choose just one type of therapy. The goal of autism treatment should be to treat all of your child's symptoms and needs. This often requires a combined treatment approach that takes advantage of many different types of therapy.

Common autism treatments include behavior therapy, speech-language therapy, play-based therapy, physical therapy, occupational therapy, and nutritional therapy.

Helping children with autism tip 4: Find help and support

Caring for a child with an autism spectrum disorder can demand a lot of energy and time. There may be days when you feel overwhelmed, stressed, or discouraged. Parenting isn’t ever easy, and raising a child with special needs is even more challenging. In order to be the best parent you can be, it’s essential that you take care of yourself.

Don’t try to do everything on your own. You don’t have to! There are many places that families of autistic kids can turn to for advice, a helping hand, advocacy, and support:

• Autism support groups – Joining an autism support group is a great way to meet other families dealing with the same challenges you are. Parents can share information, get advice, and lean on each other for emotional support. Just being around others in the same boat and sharing their experience can go a long way toward reducing the isolation many parents feel after receiving a child’s autism diagnosis.

• Respite care – Every parent needs a break now and again. And for parents coping with the added stress of autism, this is especially true. In respite care, another caregiver takes over temporarily, giving you a break for a few hours, days, or even weeks. To find respite care options in your area, see Resources section below.
• Individual, marital, or family counseling – If stress, anxiety, or depression is getting to you, you may want to see a therapist of your own. Therapy is a safe place where you can talk honestly about everything you’re feeling—the good, the bad, and the ugly. Marriage or family therapy can also help you work out problems that the challenges of life with an autistic child are causing in your spousal relationship or with other family members.

For more information. please visit:

http://www.helpguide.org/articles/autism/helping-children-with-autism.htm

Autism is mind blindness

The young couple first approached a physician practicing in Indian system of medicine (Ayurveda) and then a Homeopath for the remedy of their only male child’s abnormality in behaviour. Both the Ayurvedic physician and the Homeopath assured the young couple a ‘complete cure’ from the curious malady of their son. But treatment which lasted for many months in both the systems failed and there was no relent in the devastating symptoms of the child. Finally they decided to seek the opinion of modern medicine and they approached a pediatrician who advised them to seek the help of a psychiatrist.

The young couple described the peculiarities of their son. Till the third birth day they did not notice any abnormality in the child. The first thing they noticed about their son is that he doesn’t like people to hold him or touch him. He often doesn’t respond when they call him. Even when they move their hand in front of his face he doesn’t respond. They had to pick him up to get his attention. His speech also is defective. The parents couldn’t often follow what he was saying. He repeats whatever he heard as echo but he doesn’t know the sense of many words he repeated. He could not follow their instructions like sit, come here, stand up etc. The most distressing behaviour was his avoiding of looking into their eyes. Evidently their son was suffering from autism. There was no medicine to cure the devastating disorder. Only special training, care and attention would improve the condition of the child. I explained the various aspects of autism to them.

Autism is a pervasive developmental disorder. It was discovered independently by two physicians, Leo Kanner in Baltimore and Hans Asperger in Vienna, in the 1940s. Both doctor had any knowledge of the other, and yet by a strange coincidence they gave the malady the same name: autism. The term was derived from the Greek autos which means self. They gave this name because the main feature of the disorder is confining to self withdrawing from the outside world.

The symptoms of the disorder can be categorized into two groups. The first group of symptoms pertains to the cognition of the child and its relationship with the outside world. Mental aloneness and lack of contact with the world, particularly the social world, as well as a profound inability to engage in normal conversation are the hallmark of this disorder. Going hand in hand with this is an absence of empathy for other which means a failure to understand others’ feelings and emotions. 

The second cluster of symptoms pertains to the sensory and muscular systems of the child. The autistic children find specific sensory stimuli highly distressing. Certain sound, for example, can set off a violent temper tantrum. There is also a fear of novelty and change and an obsessive insistence on sameness, routine, and monotony. The symptoms of motor system include to-and-fro rocking of the body, repetitive hand movements including flapping motions and self-slapping, and sometimes elaborate, and repetitive rituals. These symptoms are not quite as definitive or as devastating as the social-emotional ones, but they occur so frequently that must be connected somehow.

Mind Reading and Mind Blindness

Uta Frith

Uta Frith, leading developmental psychologist working at the Institute of Cognitive Neuroscience at University College, London put forward for the first time the cognitive theory of autism. She wrote: “Individuals with autistic disorder have occasionally commented on what they perceive as an unfathomable yet ubiquitous ability of other people to “mind read” during ordinary social interactions. Normal people indeed behave as if they have an implicit theory of mind, and this allows them to explain and predict others' behavior in terms of their presumed thoughts and feelings. To give an example: you might observe me in my office bent over a filing cabinet drawer pulling out and putting back folders. You would make sense of this behavior by mentalizing, that is, automatically recognizing that I am looking for a paper that I believe is in one of the folders and that I wish to retrieve. You would think this even if you knew that the paper was not there. To explain my behavior, it is immaterial whether the missing file is in the cabinet or really somewhere else. Suppose that you say to me “Try Debbie's desk,” and I respond with “I might have known.” Without mentalizing, this everyday exchange would seem like complete non sequiturs. Further, without mentalizing, you might come up with an outlandish interpretation of what I was doing—perhaps practicing back bending and finger moving? The important point of the example is that for an instantaneous interpretation of ordinary behavior, we automatically take account of the mental state of people, their desires, and their beliefs.” Neuron Vol. 32, no. 6, 12/20/01 pp 969-979. The difficulty in mind reading would result a condition called mind blindness which is main characteristic of autism.

Mirror neurons and mind reading

In the 1980s and 1990s, neuro scientists Giacomo Rizzolatti, Giuseppe Di Pellegrino, Luciano Fadiga, Leonardo Fogassi, and Vittorio Gallese working at the University of Pama, Italy discovered mirror neurons. They found that some of the neurons controlling the movements of muscles of hands responded when the monkey observed another monkey moving hands without moving its own hands. They called these neurons mirror neurons because they acted like mirroring other monkey’s actions. Further studies confirmed that about 10% of neurons in the lower parts of the frontal and parietal lobes of the monkey’s brain have “mirror” properties. A mirror neuron is the nerve cell that fires or becomes live both when an animal acts and when the animal observes the same action performed by another. Thus the neuron mirrors the behaviour of the other, as though the observer were itself acting. Such neurons were observed in various species of animals such as primates and bird.

V S Ramachandran

According the cognitive neuroscientist Vilayanur S Ramachandran, the mind reading ability derives from the mirror neurons situated in the various parts cerebral cortex. Ramachandran writes: “The clue comes from mirror neurons. In the late 1990 it occurred to my colleagues and me that these neurons provided precisely the candidate neural mechanism we were looking for. The discovery of mirror neurons was significant because they are essentially a network of mind-reading cells with the brain. We were struck by the fact that it is precisely these presume functions of mirror neurons—such as empathy, intention-reading, mimicry, pretend play, and language learning—that are dysfunctional in autism.”  The Tell Tale Brain pp 139,140